About

Hey everyone! I am a 32-year-old misunderstood, misdiagnosed, manic mommy with a mystery illness and this is my personal journey. My attempt to manage the mayhem and hopefully not lose my f**ing mind along the way… Some might think I’m slightly twisted, but you should see the twisted little bastards invading our lives and you might understand why I am the way I am.

I am 1 of 300,000 per year.. & this is my story…

I’ve dealt with a variety of symptoms for well over two decades but somehow managed to get by. I was able to be a productive and normal functioning human being. I really miss those days.

My symptoms can be so bizarre and my doctors have so far been no help. I feel like I’m stacking diagnosis after diagnosis. A pill for this, two for that, and no warning about the horrible side effects that come along with them. That’s why I started researching and looking for the root cause of this madness. This was literally starting to drive me crazy. That was until I Googled the longest search ever. I typed in every diagnosis, every symptom, then hit enter…. Thousands of results came back all with 1 thing in common, Lyme Disease.

I had no idea things were about to get this extreme. By now my symptoms were everything from muscle spasms to heart palpitations so severe I was being rushed to the emergency room. I’ll never forget the drive to the hospital, I literally thought I was dying. I remember telling my husband and kids i love them, as if I was telling them goodbye. I was scared I would die from a heart attack on my way to the hospital.

Never in a million years would I have ever guessed I would be faced with such a misunderstood, misdiagnosed and controversial illness like Lyme Disease. I had no idea our health care system could be so broken and fail so many when we need them the most.

To be continued…

 

For a look at my symptoms check out Chronic Badass.


“There is no greater agony than bearing the untold story inside you.”
-Maya Angelo


 

 

  1. I think we have a lot in common, I went through countless years, just as you die. Hospital appointments that found nothing, doctors who didn’t believe me and a growing feeling it had to be me. I did actually come to the conclusion that everyone else went through what I did, I was just a wimp and making a fuss about what was “Normal”. It took nearly 20 years, but I got there. Not Lyme, but for me a rare form of MS, PRMS. Our conditions share much, and trust me, the care isn’t much better.

    You are far from alone.
    Take care xx

    Like

    • Thank you! Our conditions do share similar symptoms. Do you think there is any correlation between the two? I’m still hunting down things and connect dots. Doctors are no help so it’s research and talking with other patients.

      Like

      • Unfortunately, the doctor is the only person who can truly answer that question for all of us. I have so many conditions now, which actually share symptoms, that I have difficulty knowing which is being caused by which condition. There are so many conditions that seem from the symptoms almost identical, but are very different. If you look at Parkinsons and MS, they mirror much, but the final result, is different. All you can do is what I did, keep notes, and keep trying with your Dr. Going to them telling them what you think is wrong with you, doesn’t get a good reactions, better to nudge them by your symptoms.

        Liked by 1 person

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